Outcomes in patients with chronic uveitis: Which factors matter to patients? A qualitative study

Aline C. Stolk-Vos, Hamasa Kasigar, Karlijn J. Nijmeijer, Tom O. Missotten, Jan J. Busschbach, Joris J. Van De Klundert, Leonieke W. Kranenburg

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4 Citas (Scopus)

Resumen

Purpose: Outcome measurements currently used in chronic uveitis care fail to cover the full patient perspective. The aim of this study is to develop a conceptual model of the factors that adult patients with chronic uveitis consider to be important when evaluating the impact of their disease and treatment. Methods: A qualitative study design was used. Twenty chronic uveitis patients were recruited to participate in two focus groups. Data were transcribed verbatim and analysed using thematic analysis in ATLAS.ti. Results: Coding of the transcripts resulted in a total of 19 codes divided over five themes: 1) disease symptoms and treatment; 2) diagnosis and treatment process; 3) impact on daily functioning; 4) emotional impact; and 5) treatment success factors. Conclusion: The conceptual model resulting from this study can contribute to the development of future uveitis specific measures in adults.

Idioma originalInglés
Número de artículo125
PublicaciónBMC Ophthalmology
Volumen20
N.º1
DOI
EstadoPublicada - 30 mar. 2020
Publicado de forma externa

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