TY - JOUR
T1 - Dementia caregiving across Latin America and the Caribbean and brain health diplomacy
AU - Multi-Partner Consortium to Expand Dementia Research in Latin America
AU - Ibáñez, Agustin
AU - Pina-Escudero, Stefanie Danielle
AU - Possin, Katherine L.
AU - Quiroz, Yakeel T.
AU - Peres, Fernando Aguzzoli
AU - Slachevsky, Andrea
AU - Sosa, Ana Luisa
AU - Brucki, Sonia M.D.
AU - Miller, Bruce L.
N1 - Funding Information:
We thank colleagues at the Multi-Partner Consortium to Expand Dementia Research in Latin America (supported by the National Institutes of Health, the National Institute on Aging [grant number R01 AG057234], the Alzheimer's Association [grant number SG-20–725707], the Rainwater Charitable foundation [Tau Consortium], and the Global Brain Health Institute) for their insightful revisions and suggestions. AI, KLP, and BLM are recipients of a National Institutes of Health grant via the Multi-Partner Consortium to Expand Dementia Research in Latin America. AI is also supported by the Sistema General de Regalias (grant number BPIN2018000100059), Universidad del Valle (member number CI 5316), Agencia Nacional de Investigación y Desarrollo and Fondo Nacional de Desarrollo Científico y Tecnológico Regular (grant number 1210195). The contents of this publication are solely the responsibility of the authors and do not represent the official views of these institutions.
Funding Information:
We thank colleagues at the Multi-Partner Consortium to Expand Dementia Research in Latin America (supported by the National Institutes of Health, the National Institute on Aging [grant number R01 AG057234], the Alzheimer's Association [grant number SG-20?725707], the Rainwater Charitable foundation [Tau Consortium], and the Global Brain Health Institute) for their insightful revisions and suggestions. AI, KLP, and BLM are recipients of a National Institutes of Health grant via the Multi-Partner Consortium to Expand Dementia Research in Latin America. AI is also supported by the Sistema General de Regalias (grant number BPIN2018000100059), Universidad del Valle (member number CI 5316), Agencia Nacional de Investigaci?n y Desarrollo and Fondo Nacional de Desarrollo Cient?fico y Tecnol?gico Regular (grant number 1210195). The contents of this publication are solely the responsibility of the authors and do not represent the official views of these institutions.
Publisher Copyright:
© 2021 The Author(s). Published by Elsevier Ltd. This is an Open Access article under the CC BY-NC-ND 4.0 license
PY - 2021/4
Y1 - 2021/4
N2 - The prevalence of dementia in Latin America and the Caribbean is growing rapidly, increasing the burden placed on caregivers. Exacerbated by fragile health-care systems, unstable economies, and extensive inequalities, caregiver burden in this region is among the highest in the world. We reviewed the major challenges to caregiving in Latin America and the Caribbean, and we propose regional and coordinated actions to drive future change. Current challenges include the scarcity of formal long-term care, socioeconomic and social determinants of health disparities, gender-biased burdens, growing dementia prevalence, and the effect of the current COVID-19 pandemic on families affected by dementia. Firstly, we propose local and regional short-term strategic recommendations, including systematic identification of specific caregiver needs, testing of evidence-based local interventions, contextual adaptation of strategies to different settings and cultures, countering gender bias, strengthening community support, provision of basic technology, and better use of available information and communications technology. Additionally, we propose brain health diplomacy (ie, global actions aimed to overcome the systemic challenges to brain health by bridging disciplines and sectors) and convergence science as frameworks for long-term coordinated responses, integrating tools, knowledge, and strategies to expand access to digital technology and develop collaborative models of care. Addressing the vast inequalities in dementia caregiving across Latin America and the Caribbean requires innovative, evidence-based solutions coordinated with the strengthening of public policies.
AB - The prevalence of dementia in Latin America and the Caribbean is growing rapidly, increasing the burden placed on caregivers. Exacerbated by fragile health-care systems, unstable economies, and extensive inequalities, caregiver burden in this region is among the highest in the world. We reviewed the major challenges to caregiving in Latin America and the Caribbean, and we propose regional and coordinated actions to drive future change. Current challenges include the scarcity of formal long-term care, socioeconomic and social determinants of health disparities, gender-biased burdens, growing dementia prevalence, and the effect of the current COVID-19 pandemic on families affected by dementia. Firstly, we propose local and regional short-term strategic recommendations, including systematic identification of specific caregiver needs, testing of evidence-based local interventions, contextual adaptation of strategies to different settings and cultures, countering gender bias, strengthening community support, provision of basic technology, and better use of available information and communications technology. Additionally, we propose brain health diplomacy (ie, global actions aimed to overcome the systemic challenges to brain health by bridging disciplines and sectors) and convergence science as frameworks for long-term coordinated responses, integrating tools, knowledge, and strategies to expand access to digital technology and develop collaborative models of care. Addressing the vast inequalities in dementia caregiving across Latin America and the Caribbean requires innovative, evidence-based solutions coordinated with the strengthening of public policies.
UR - http://www.scopus.com/inward/record.url?scp=85105344221&partnerID=8YFLogxK
U2 - 10.1016/S2666-7568(21)00031-3
DO - 10.1016/S2666-7568(21)00031-3
M3 - Review article
AN - SCOPUS:85105344221
SN - 2666-7568
VL - 2
SP - e222-e231
JO - The Lancet Healthy Longevity
JF - The Lancet Healthy Longevity
IS - 4
ER -