Outcomes in patients with chronic uveitis: Which factors matter to patients? A qualitative study

Aline C. Stolk-Vos, Hamasa Kasigar, Karlijn J. Nijmeijer, Tom O. Missotten, Jan J. Busschbach, Joris J. Van De Klundert, Leonieke W. Kranenburg

Research output: Contribution to journalArticlepeer-review

4 Scopus citations


Purpose: Outcome measurements currently used in chronic uveitis care fail to cover the full patient perspective. The aim of this study is to develop a conceptual model of the factors that adult patients with chronic uveitis consider to be important when evaluating the impact of their disease and treatment. Methods: A qualitative study design was used. Twenty chronic uveitis patients were recruited to participate in two focus groups. Data were transcribed verbatim and analysed using thematic analysis in ATLAS.ti. Results: Coding of the transcripts resulted in a total of 19 codes divided over five themes: 1) disease symptoms and treatment; 2) diagnosis and treatment process; 3) impact on daily functioning; 4) emotional impact; and 5) treatment success factors. Conclusion: The conceptual model resulting from this study can contribute to the development of future uveitis specific measures in adults.

Original languageEnglish
Article number125
JournalBMC Ophthalmology
Issue number1
StatePublished - 30 Mar 2020
Externally publishedYes


  • Ophthalmology (MeSH)
  • Patient reported outcome measures (MeSH)
  • Qualitative research (MeSH)
  • Quality of health care (MeSH)
  • Quality of life (MeSH)
  • Surveys and questionnaires (MeSH)
  • Uveitis (MeSH)


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