Outcomes in patients with chronic uveitis: Which factors matter to patients? A qualitative study

Aline C. Stolk-Vos; Hamasa Kasigar; Karlijn J. Nijmeijer; Tom O. Missotten; Jan J. Busschbach; Joris J. Van De Klundert; Leonieke W. Kranenburg

doi:10.1186/s12886-020-01388-y

Outcomes in patients with chronic uveitis: Which factors matter to patients? A qualitative study

Aline C. Stolk-Vos, Hamasa Kasigar, Karlijn J. Nijmeijer, Tom O. Missotten, Jan J. Busschbach, Joris J. Van De Klundert, Leonieke W. Kranenburg

Research output: Contribution to journal › Article › peer-review

6 Scopus citations

Abstract

Purpose: Outcome measurements currently used in chronic uveitis care fail to cover the full patient perspective. The aim of this study is to develop a conceptual model of the factors that adult patients with chronic uveitis consider to be important when evaluating the impact of their disease and treatment. Methods: A qualitative study design was used. Twenty chronic uveitis patients were recruited to participate in two focus groups. Data were transcribed verbatim and analysed using thematic analysis in ATLAS.ti. Results: Coding of the transcripts resulted in a total of 19 codes divided over five themes: 1) disease symptoms and treatment; 2) diagnosis and treatment process; 3) impact on daily functioning; 4) emotional impact; and 5) treatment success factors. Conclusion: The conceptual model resulting from this study can contribute to the development of future uveitis specific measures in adults.

Original language	English
Article number	125
Journal	BMC Ophthalmology
Volume	20
Issue number	1
DOIs	https://doi.org/10.1186/s12886-020-01388-y
State	Published - 30 Mar 2020
Externally published	Yes

Keywords

Ophthalmology (MeSH)
Patient reported outcome measures (MeSH)
Qualitative research (MeSH)
Quality of health care (MeSH)
Quality of life (MeSH)
Surveys and questionnaires (MeSH)
Uveitis (MeSH)

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10.1186/s12886-020-01388-y

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title = "Outcomes in patients with chronic uveitis: Which factors matter to patients? A qualitative study",

abstract = "Purpose: Outcome measurements currently used in chronic uveitis care fail to cover the full patient perspective. The aim of this study is to develop a conceptual model of the factors that adult patients with chronic uveitis consider to be important when evaluating the impact of their disease and treatment. Methods: A qualitative study design was used. Twenty chronic uveitis patients were recruited to participate in two focus groups. Data were transcribed verbatim and analysed using thematic analysis in ATLAS.ti. Results: Coding of the transcripts resulted in a total of 19 codes divided over five themes: 1) disease symptoms and treatment; 2) diagnosis and treatment process; 3) impact on daily functioning; 4) emotional impact; and 5) treatment success factors. Conclusion: The conceptual model resulting from this study can contribute to the development of future uveitis specific measures in adults.",

keywords = "Ophthalmology (MeSH), Patient reported outcome measures (MeSH), Qualitative research (MeSH), Quality of health care (MeSH), Quality of life (MeSH), Surveys and questionnaires (MeSH), Uveitis (MeSH)",

author = "Stolk-Vos, {Aline C.} and Hamasa Kasigar and Nijmeijer, {Karlijn J.} and Missotten, {Tom O.} and Busschbach, {Jan J.} and {Van De Klundert}, {Joris J.} and Kranenburg, {Leonieke W.}",

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year = "2020",

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day = "30",

doi = "10.1186/s12886-020-01388-y",

language = "English",

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T2 - Which factors matter to patients? A qualitative study

AU - Stolk-Vos, Aline C.

AU - Kasigar, Hamasa

AU - Nijmeijer, Karlijn J.

AU - Missotten, Tom O.

AU - Busschbach, Jan J.

AU - Van De Klundert, Joris J.

AU - Kranenburg, Leonieke W.

PY - 2020/3/30

Y1 - 2020/3/30

N2 - Purpose: Outcome measurements currently used in chronic uveitis care fail to cover the full patient perspective. The aim of this study is to develop a conceptual model of the factors that adult patients with chronic uveitis consider to be important when evaluating the impact of their disease and treatment. Methods: A qualitative study design was used. Twenty chronic uveitis patients were recruited to participate in two focus groups. Data were transcribed verbatim and analysed using thematic analysis in ATLAS.ti. Results: Coding of the transcripts resulted in a total of 19 codes divided over five themes: 1) disease symptoms and treatment; 2) diagnosis and treatment process; 3) impact on daily functioning; 4) emotional impact; and 5) treatment success factors. Conclusion: The conceptual model resulting from this study can contribute to the development of future uveitis specific measures in adults.

AB - Purpose: Outcome measurements currently used in chronic uveitis care fail to cover the full patient perspective. The aim of this study is to develop a conceptual model of the factors that adult patients with chronic uveitis consider to be important when evaluating the impact of their disease and treatment. Methods: A qualitative study design was used. Twenty chronic uveitis patients were recruited to participate in two focus groups. Data were transcribed verbatim and analysed using thematic analysis in ATLAS.ti. Results: Coding of the transcripts resulted in a total of 19 codes divided over five themes: 1) disease symptoms and treatment; 2) diagnosis and treatment process; 3) impact on daily functioning; 4) emotional impact; and 5) treatment success factors. Conclusion: The conceptual model resulting from this study can contribute to the development of future uveitis specific measures in adults.

KW - Ophthalmology (MeSH)

KW - Patient reported outcome measures (MeSH)

KW - Qualitative research (MeSH)

KW - Quality of health care (MeSH)

KW - Quality of life (MeSH)

KW - Surveys and questionnaires (MeSH)

KW - Uveitis (MeSH)

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DO - 10.1186/s12886-020-01388-y

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JO - BMC Ophthalmology

JF - BMC Ophthalmology

IS - 1

M1 - 125

ER -

Outcomes in patients with chronic uveitis: Which factors matter to patients? A qualitative study

Abstract

Keywords

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